I’m so honored (and shocked!!) to have been chosen as the designer for the National Organization for Rare Disease 2024 Rare Action Conference swag bags. This is an organization that is very near to my heart, and to be able to collaborate with them has been both a humbling and exhilarating experience. NORD provides patient advocacy, support, and resources for folks with rare diseases in the United States.
Zebras are often seen as a mascot of sorts for the rare disease community. Just as no two zebras have the exact same stripe pattern, individuals with rare diseases often present with symptoms and characteristics that are unique to them. While this uniqueness comes with its own set of difficulties, it also comes with the opportunity to spread awareness about these lesser-known illnesses. Being rare isn’t all bad!
Please join me in wishing the medical professionals, speakers, and rare families a wonderful time at this year’s conference, taking place in early June in Los Angeles.